Online resources came up empty
Articles would come up, but they were not specific to Black people. The most recent study at the time was from 1990! Here, it was 2012.
Nothing was out there to communicate with Black people about living with MS. And that made me so angry. I’m looking for articles, and there’s always a stock photo of old women or white people. They were mimicking what they knew, “they” meaning the health care industry.
Here I am trying to Google what’s going on, and it’s just empty as if Black people can’t get it. I’m a Black woman who’s trying to see myself and understand myself, but the verbiage and science at the time said things like, “MS is more prevalently found in Caucasian women from this age up.”
I’m lost. I’m here. I'm unsure of what's next.
And I’m sick of it. I knew I couldn’t be the only one because there were a couple of Black celebrities who had it – Montel Williams and Richard Prior. But there had to be others who felt the same way as me. That’s when I started becoming active and involved in MS walks.
I posted on social media about my diagnosis. I wasn’t trying to create content or anything, but I felt comfortable being vulnerable and sharing this new world of mine. And once I did start sharing my MS experience, that’s when things started to change.
People started to respond.
My multiple sclerosis story